The Rare Awareness Rare Education (RARE) Portal is managed by a small but dedicated team. Use the form below for general enquiries. Please do not submit any sensitive information via this form.
Contact2026-02-13T09:28:34+11:00
Updated: 13 February, 2026
DISCLAIMER: The information on the Rare Awareness Rare Education (RARE) Portal is intended for educational purposes only and does not replace professional advice.
Rare diseases typically display a high level of symptom complexity and variability. Individuals diagnosed with the same rare disease may be impacted differently and each person’s experience is unique. Please seek support from qualified healthcare professionals to learn more about the most suitable care and support options for you. See our Terms of Use for more information.
Development of the RARE Portal has been funded by the Australian Government and is one of the key deliverables of the National Strategic Action Plan for Rare Diseases.
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