Australia’s growing national resource for rare diseases

Australia’s growing national resource for rare diseases

About the RARE Portal

Search for services nationally or by state or territory

RARE Helpline

The RARE Helpline aims to provide timely access to information and answer key questions people living with a rare and complex disease often face.

Mental Health and Wellbeing Support

Information on mental health services and resources available in Australia for people living with a rare disease.

General information about rare diseases

General
information
about rare
diseases

Rare Disease Community

Information for the rare disease community, including people living with a rare disease, caregivers, rare disease organisation leaders and priority populations.

Disability Support Information

Information for people living with rare disease disability, including caregivers.

Aboriginal and Torres Strait Islander People

A collection of rare disease resources for Aboriginal and Torres Strait Islander people living with a rare disease, including caregivers.

Culturally and Linguistically Diverse Community

A collection of rare disease resources for culturally and linguistically diverse people living with a rare disease, including caregivers.

Regional, Remote and Rural Community

A collection of rare disease resources for people based in regional, rural and remote areas living with a rare disease, including caregivers.

Healthcare Professionals

Rare disease education and support resources for primary health care professionals.

Researchers

Information about research and data collection involving people living with a rare disease in research, guides and resources, education and funding opportunities.